One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance, and inclusion in society.
James Charlton has produced a ringing indictment of disability oppression, which, he says, is rooted in degradation, dependency, and powerlessness and is experienced in some form by five hundred million persons throughout the world who have physical, sensory, cognitive, or developmental disabilities. Nothing About Us Without Us is the first book in the literature on disability to provide a theoretical overview of disability oppression that shows its similarities to, and differences from, racism, sexism, and colonialism. Charlton's analysis is illuminated by interviews he conducted over a ten-year period with disability rights activists throughout the Third World, Europe, and the United States. Charlton finds an antidote for dependency and powerlessness in the resistance to disability oppression that is emerging worldwide. His interviews contain striking stories of self-reliance and empowerment evoking the new consciousness of disability rights activists. As a latecomer among the world's liberation movements, the disability rights movement will gain visibility and momentum from Charlton's elucidation of its history and its political philosophy of self-determination, which is captured in the title of his book. Nothing About Us Without Us expresses the conviction of people with disabilities that they know what is best for them. Charlton's combination of personal involvement and theoretical awareness assures greater understanding of the disability rights movement.
Based on interviews with almost a hundred activists, this book provides a detailed history of the struggle for disability rights in the United States. It is a complex story of shifts in consciousness and shifts in policy, of changing focuses on particular disabilities such as blindness, deafness, polio, quadriplegia, psychiatric and developmental disabilities, chronic conditions (for example, cancer and heart disease), and AIDS, and of activism and policymaking across disabilities. Referring to the Americans with Disabilities Act as "every American's insurance policy," the authors recount the genesis of this civil rights approach to disability, from the almost forgotten disability activism of the 1930s to the independent living movement of the 1970s to the call for disability pride of the 1990s. Like other civil rights struggles, the disability rights movement took place in the streets and in the courts as activists fought for change in the schools, the workplace, and in the legal system. They continue to fight for effective access to the necessities of everyday life -- to telephones, buses, planes, public buildings, restaurants, and toilets. The history of disability rights mirrors the history of the country. Both World Wars sparked changes in disability policy and changes in medical technology as veterans without without limbs and with other disabilities return home. The empowerment of people with disabilities has become another chapter in the struggles over identity politics that began in the 1960s. Today, with the expanding ability of people with disabilities to enter the workforce, and a growing elderly population increasingly significant at a time when HMOs are trying to contain healthcare expenditures.
Inaugurates a new field of disability studies by framing disability as a minority discourse rather than a medical one, revising oppressive narratives and revealing liberatory ones. The book examines disabled figures in Harriet Beecher Stowe's Uncle Tom's Cabin and Rebecca Harding Davis's Life in the Iron Mills, in African-American novels by Toni Morrison and Audre Lorde, and in the popular cultural ritual of the freak show.
Exploring the disability history of slavery Time and again, antebellum Americans justified slavery and white supremacy by linking blackness to disability, defectiveness, and dependency. Jenifer L. Barclay examines the ubiquitous narratives that depicted black people with disabilities as pitiable, monstrous, or comical, narratives used not only to defend slavery but argue against it. As she shows, this relationship between ableism and racism impacted racial identities during the antebellum period and played an overlooked role in shaping American history afterward. Barclay also illuminates the everyday lives of the ten percent of enslaved people who lived with disabilities. Devalued by slaveholders as unsound and therefore worthless, these individuals nonetheless carved out an unusual autonomy. Their roles as caregivers, healers, and keepers of memory made them esteemed within their own communities and celebrated figures in song and folklore. Prescient in its analysis and rich in detail, The Mark of Slavery is a powerful addition to the intertwined histories of disability, slavery, and race.
A beautifully illustrated history of the human encounter with unreason The loss of reason, a sense of alienation from the commonsense world we all like to imagine we inhabit, the shattering emotional turmoil that seizes hold and won't let go--these are some of the traits we associate with madness. Today, mental disturbance is most commonly viewed through a medical lens, but societies have also sought to make sense of it through religion or the supernatural, or by constructing psychological or social explanations in an effort to tame the demons of unreason. Madness in Civilization traces the long and complex history of this affliction and our attempts to treat it. Beautifully illustrated throughout, Madness in Civilization takes readers from antiquity to today, painting a vivid and often harrowing portrait of the different ways that cultures around the world have interpreted and responded to the seemingly irrational, psychotic, and insane. From the Bible to Sigmund Freud, from exorcism to mesmerism, from Bedlam to Victorian asylums, from the theory of humors to modern pharmacology, the book explores the manifestations and meanings of madness, its challenges and consequences, and our varied responses to it. It also looks at how insanity has haunted the imaginations of artists and writers and describes the profound influence it has had on the arts, from drama, opera, and the novel to drawing, painting, and sculpture. Written by one of the world's preeminent historians of psychiatry, Madness in Civilization is a panoramic history of the human encounter with unreason.
Crying Hands meticulously delineates the antecedents of Nazi eugenics, beginning with Social Darwinism (postulated in the mid-nineteenth century) and tracing the various sterilization laws later initiated throughout the world, including many passed and practiced in the United States. This exceptional scholarship is movingly paralleled by the human faces fixed to the numbing statistics, as in story after story those affected recount their irretrievable loss, pain, and misplaced shame imposed upon them by the Nazi regime. Through their stories, told to Biesold in German Sign Language, they have given voice to the countless others who died from the specious science practiced by the Third Reich. And now their own trials have finally been acknowledged.
Compelling first-person accounts of the struggle to secure equal rights for Americans with disabilities.
Many people are shocked upon discovering that tens of thousands of innocent persons in the United States were involuntarily sterilized, forced into institutions, and otherwise maltreated within the course of the eugenic movement (1900-30). Such social control efforts are easier to understand when we consider the variety of dehumanizing and fear-inducing rhetoric propagandists invoke to frame their potential victims. This book details the major rhetorical themes employed within the context of eugenic propaganda, drawing largely on original sources of the period. Early in the twentieth century the term "moron" was developed to describe the primary targets of eugenic control. This book demonstrates how the image of moronity in the United States was shaped by eugenicists. This book will be of interest not only to disability and eugenic scholars and historians, but to anyone who wants to explore the means by which pejorative metaphors are used to support social control efforts against vulnerable community groups.
During the late nineteenth and early twentieth centuries, Americans with all sorts of disabilities came to be labeled as "unproductive citizens." Before that, disabled people had contributed as they were able in homes, on farms, and in the wage labor market, reflecting the fact that Americans had long viewed productivity as a spectrum that varied by age, gender, and ability. But as Sarah F. Rose explains in No Right to Be Idle, a perfect storm of public policies, shifting family structures, and economic changes effectively barred workers with disabilities from mainstream workplaces and simultaneously cast disabled people as morally questionable dependents in need of permanent rehabilitation to achieve "self-care" and "self-support." By tracing the experiences of policymakers, employers, reformers, and disabled people caught up in this epochal transition, Rose masterfully integrates disability history and labor history. She shows how people with disabilities lost access to paid work and the status of "worker--a shift that relegated them and their families to poverty and second-class economic and social citizenship. This has vast consequences for debates about disability, work, poverty, and welfare in the century to come.
The Disability Rag is the voice of a mighty revolution, and this stunning collection from its first 15 years will become an invaluable primer for anyone who wants to understand the new thinking of the disability rights movement. Here are the urgent, spirited and provocative stories that have changed the way people -- disabled and nondisabled -- have come to view what it means to have a disability.
Midget, feeble-minded, crippled, lame, and insane: these terms and the historical photographs that accompany them may seem shocking to present-day audiences. A young woman with no arms wears a sequined tutu and smiles for the camera as she smokes a cigarette with her toes; a man holds up two prosthetic legs while his own legs are bared to the knees to show his missing feet. The photos were used as promotional material for circus sideshows, charity drives, and art galleries. They were found on begging cards and in family albums. In Picturing Disability, Bogdan and his collaborators gather over 200 historical photographs showing how people with disabilities have been presented and exploring the contexts in which they were photographed. Rather than focus on the subjects, Bogdan turns his gaze on the people behind the camera. He examines the historic and cultural environment of the photographs to decipher the relationship between the images and the perspectives of the picture makers. In analyzing the visual rhetoric of these photographs, Bogdan identifies the wide variety of genres, from sideshow souvenirs to clinical photographs. Ranging from the 1860s, when photographs first became readily available, to the 1970s, when the disability rights movement became a force for significant change, Bogdan chronicles the evolution of disability image creation. Picturing Disability takes the reader beyond judging images as positive or slanderous to reveal how particular contexts generate specific emotions and lasting depictions.
Author, advocacy journalist, disability rights activist, feminist, and founder of Mouth magazine, Lucy Gwin (1943--2014) made her mark by helping those in "handicaptivity" find their voice. Gwin produced over one hundred issues of the magazine--one of the most radical and significant disability rights publications--and masterminded its acerbic, sometimes funny, and often moving articles about people from throughout the disability community. In this engrossing biography, James M. Odato provides an intimate portrait of Gwin, detailing how she forged her own path into activism. After an automobile accident left her with a brain injury, Gwin became a tireless advocate for the equal rights of people she termed "dislabled." More than just a publisher, she fought against corruption in the rehabilitation industry, organized for the group Not Dead Yet, and much more. With Gwin's story at the center, Odato introduces readers to other key disability rights activists and organizations, and supplies context on current contentious topics such as physician-assisted suicide. Gwin's impact on disability rights was monumental, and it is time her story is widely known.
Novel Bodies examines how disability shapes the British literary history of sexuality. Jason Farr shows that various eighteenth-century novelists represent disability and sexuality in flexible ways to reconfigure the political and social landscapes of eighteenth-century Britain. In imagining the lived experience of disability as analogous to--and as informed by--queer genders and sexualities, the authors featured in Novel Bodies expose emerging ideas of able-bodiedness and heterosexuality as interconnected systems that sustain dominant models of courtship, reproduction, and degeneracy. Further, Farr argues that they use intersections of disability and queerness to stage an array of contemporaneous debates covering topics as wide-ranging as education, feminism, domesticity, medicine, and plantation life. In his close attention to the fiction of Eliza Haywood, Samuel Richardson, Sarah Scott, Maria Edgeworth, and Frances Burney, Farr demonstrates that disabled and queer characters inhabit strict social orders in unconventional ways, and thus opened up new avenues of expression for readers from the eighteenth century forward. Published by Bucknell University Press. Distributed worldwide by Rutgers University Press.
Drawing on extensive fieldwork and a variety of original sources, Katharina Heyer examines three case studies--Germany, Japan, and the United Nations--to trace the evolution of a disability rights model from its origins in the U.S. through its adaptations in other democracies to its current formulation in international law. She demonstrates that, although notions of disability, equality, and rights are reinterpreted and contested within various political contexts, ultimately the result may be a more robust and substantive understanding of equality. Rights Enabled is a truly interdisciplinary work, combining sociolegal literature on rights and legal mobilization with a deep cultural and sociopolitical analysis of the concept of disability developed in Disability Studies. Heyer raises important issues for scholarship on comparative rights, the global reach of social movements, and the uses and limitations of rights-based activism.
Accessible, engaging, and filled with contributions by the country's most celebrated disability experts, this fascinating volume skillfully captures how intellectual disability has been understood from prehistoric times to present. Readers will discover how different societies have responded to people with disability throughout history, how life has changed for people with intellectual disability and their families over the centuries, and how key historical figures and events sparked social change and shaped our modern understanding of intellectual disability. Enhanced with remarkable images and illustrations, including exclusive photos from the editor's private collection of cultural artifacts, this informal history is a must-read for anyone devoted to improving the lives of people with intellectual disability. TOP DISABILITY EXPERTS EXPLORE: Early ideas about the causes of intellectual disability Evolution of the concept of intellectual disability The role of religion in the ancient world's understanding of disability Changing approaches to education and intervention The rise and fall of the institution system Depictions of intellectual disability in film, literature, and art State-sanctioned sterilization programs in the twentieth century The self-advocacy movement The emergence and impact of parent associations, support groups, and training programs How and why terminology changed throughout the years and more
Ableism in Academia provides an interdisciplinary outlook on ableism that is currently missing. Through reporting research data and exploring personal experiences, the contributors theorise and conceptualise what it means to be/work outside the stereotypical norm. The volume brings together a range of perspectives, including feminism, post-structuralism, such as Derridean and Foucauldian theory, crip theory and disability theory, and draw on the width and breadth of a number of related disciplines. Contributors use technicism, leadership, social justice theories and theories of embodiment to raise awareness and increase understanding of the marginalised; that is those academics who are not perfect. These theories are placed in the context of neoliberal academia, which is distant from the privileged and romanticised versions that exist in the public and internalised imaginations of academics, and used to interrogate aspects of identity, aspects of how disability is performed, and to argue that ableism is not just a disability issue.
Disability is often described as a tragedy, a crisis, or an aberration, though 1 in 5 people worldwide have a disability. Why is this common human experience rendered exceptional? In All Our Families, disability studies scholar Jennifer Natalya Fink argues that this originates in our families. When we cut a disabled member out of the family story, disability remains a trauma as opposed to a shared and ordinary experience. This makes disability and its diagnosis traumatic and exceptional. Weaving together stories of members of her own family with sociohistorical research, Fink illustrates how the eradication of disabled people from family narratives is rooted in racist, misogynistic, and antisemitic sorting systems inherited from Nazis. By examining the rhetoric of genetic testing, she shows that a fear of disability begins before a child is even born and that a fear of disability is, fundamentally, a fear of care. Fink analyzes our racist and sexist care systems, exposing their inequities as a source of stigmatizing ableism.
Why is the sexuality of people with intellectual disabilities often deemed "risky" or "inappropriate" by teachers, parents, support staff, medical professionals, judges, and the media? Should sexual citizenship depend on IQ? Confronting such questions head-on, Already Doing It exposes the "sexual ableism" that denies the reality of individuals who, despite the restrictions they face, actively make decisions about their sexual lives. Tracing the history of efforts in the United States to limit the sexual freedoms of such persons⎯using methods such as forced sterilization, invasive birth control, and gender-segregated living arrangements--Michael Gill demonstrates that these widespread practices stemmed from dominant views of disabled sexuality, not least the notion that intellectually disabled women are excessively sexual and fertile while their male counterparts are sexually predatory. Analyzing legal discourses, sex education materials, and news stories going back to the 1970s, he shows, for example, that the intense focus on "stranger danger" in sex education for intellectually disabled individuals disregards their ability to independently choose activities and sexual partners--including nonheterosexual ones, who are frequently treated with heightened suspicion. He also examines ethical issues surrounding masturbation training that aims to regulate individuals' sexual lives, challenges the perception that those whose sexuality is controlled (or rejected) should not reproduce, and proposes recognition of the right to become parents for adults with intellectual disabilities. A powerfully argued call for sexual and reproductive justice for people with intellectual disabilities, Already Doing It urges a shift away from the compulsion to manage "deviance" (better known today as harm reduction) because the right to pleasure and intellectual disability are not mutually exclusive. In so doing, it represents a vital new contribution to the ongoing debate over who, in the United States, should be allowed to have sex, reproduce, marry, and raise children.
How else can I quench this thirst? My lips travel down your spine, drink the smoothness of your skin. I am searching for the core: What is beautiful? Who decides? Can the laws of nature be defied? Your body tells me: come close. But beauty distances even as it draws me near. What does my body want from yours? My twisted legs around your neck. You bend me back. Even though you can't give the bones at birth I wasn't given, I let you deep inside. You give me--what? Peeling back my skin, you expose my missing bones. And my heart, long before you came, just as broken. I don't know who to blame. So each night, naked on the bed, my body doesn't want repair, but longs for innocence. If innocent, despite the flaws I wear, I am beautiful. Sheila Blackis a poet and children's book writer. In 2012, Poet Laureate Philip Levine chose her as a recipient of the Witter Bynner Fellowship. Disability activistJennifer Bartlettis a poet and critic with roots in the Language school. Michael Northenis a poet and the editor ofWordgathering: A Journal of Poetics and Disability.
In Black Madness :: Mad Blackness Therí Alyce Pickens rethinks the relationship between Blackness and disability, unsettling the common theorization that they are mutually constitutive. Pickens shows how Black speculative and science fiction authors such as Octavia Butler, Nalo Hopkinson, and Tananarive Due craft new worlds that reimagine the intersection of Blackness and madness. These creative writer-theorists formulate new parameters for thinking through Blackness and madness. Pickens considers Butler's Fledgling as an archive of Black madness that demonstrates how race and ability shape subjectivity while constructing the building blocks for antiracist and anti-ableist futures. She examines how Hopkinson's Midnight Robber theorizes mad Blackness and how Due's African Immortals series contests dominant definitions of the human. The theorizations of race and disability that emerge from these works, Pickens demonstrates, challenge the paradigms of subjectivity that white supremacy and ableism enforce, thereby pointing to the potential for new forms of radical politics.
Sharing the personal stories of individuals with disabilities who describe both the challenges and successes of their time in higher education, and with a major section on the findings of broad ranging research into the experiences of such students, the book explores the current situation, what works, and how things can be improved. "You are not college material" or "you don't belong in college" are comments frequently heard by students with disabilities. Despite this, college education is now an expected part of the transition to adulthood for many individuals with disabilities. The book includes practical advice to encourage self-advocacy in students with disabilities, and to support the professionals who are facing the challenges alongside them. Covering cerebral palsy, autism spectrum disorders, intellectual disabilities, and much more, this is vital reading for parents, individuals with disabilities, school teachers, college professors, and professionals working with adults with disabilities.
In this probing exploration of what it means to be deaf, Brenda Brueggemann goes beyond any simple notion of identity politics to explore the very nature of identity itself. Looking at a variety of cultural texts, she brings her fascination with borders and between-places to expose and enrich our understanding of how deafness embodies itself in the world, in the visual, and in language. Taking on the creation of the modern deaf subject, Brueggemann ranges from the intersections of gender and deafness in the work of photographers Mary and Frances Allen at the turn of the last century, to the state of the field of Deaf Studies at the beginning of our new century. She explores the power and potential of American Sign Language--wedged, as she sees it, between letter-bound language and visual ways of learning--and argues for a rhetorical approach and digital future for ASL literature. The narration of deaf lives through writing becomes a pivot around which to imagine how digital media and documentary can be used to convey deaf life stories. Finally, she expands our notion of diversity within the deaf identity itself, takes on the complex relationship between deaf and hearing people, and offers compelling illustrations of the intertwined, and sometimes knotted, nature of individual and collective identities within Deaf culture.
This vital addition to carceral, prison, and disability studies draws important new links between deinstitutionalization and decarceration Prison abolition and decarceration are increasingly debated, but it is often without taking into account the largest exodus of people from carceral facilities in the twentieth century: the closure of disability institutions and psychiatric hospitals. Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system. Liat Ben-Moshe provides groundbreaking case studies that show how abolition is not an unattainable goal but rather a reality, and how it plays out in different arenas of incarceration--antipsychiatry, the field of intellectual disabilities, and the fight against the prison-industrial complex. Ben-Moshe discusses a range of topics, including why deinstitutionalization is often wrongly blamed for the rise in incarceration; who resists decarceration and deinstitutionalization, and the coalitions opposing such resistance; and how understanding deinstitutionalization as a form of residential integration makes visible intersections with racial desegregation. By connecting deinstitutionalization with prison abolition, Decarcerating Disability also illuminates some of the limitations of disability rights and inclusion discourses, as well as tactics such as litigation, in securing freedom. Decarcerating Disability's rich analysis of lived experience, history, and culture helps to chart a way out of a failing system of incarceration.
While the disability rights movement of recent decades has a rich and well-documented history, it is a history mostly focused on the Global North. Disability in Africa presents an interdisciplinary approach to cultural, health, and policy challenges that disability issues have raised throughout the African continent. The volume draws on the achievements of disability studies while acknowledging the demands and challenges of particular African contexts. The authors bring diverse methodological approaches and expertise to bear on these issues, ranging from anthropology and bioethics to special education and community rehabilitation. Essays consider indigenously African definitions of disability as well as exploring disability at the intersection of poverty, geography, and globalized biopolitics. Contributors analyze the difficulties of implementing disability policy across the continent while also being mindful of successful approaches taken at local, national, and international levels. Disability in Africa thus charts new avenues for disability studies research in and about Africa.
For psychotherapist, painter, feminist, filmmaker, writer, and disability activist Harilyn Rousso, hearing well-intentioned people tell her, "You're so inspirational!" is patronizing, not complimentary. In her empowering and at times confrontational memoir, Don't Call Me Inspirational, Rousso, who has cerebral palsy, describes overcoming the prejudice against disability--not overcoming disability. She addresses the often absurd and ignorant attitudes of strangers, friends, and family. Rousso also examines her own prejudice toward her disabled body, and portrays the healing effects of intimacy and creativity, as well as her involvement with the disability rights community. She intimately reveals herself with honesty and humor and measures her personal growth as she goes from "passing" to embracing and claiming her disability as a source of pride, positive identity, and rebellion. A collage of images about her life, rather than a formal portrait, Don't Call Me Inspirational celebrates Rousso's wise, witty, productive, outrageous life, disability and all.
First published in 1999, the groundbreaking Exile and Pride is essential to the history and future of disability politics. Eli Clare's revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and permanently changed the landscape of disability politics and queer liberation. With a poet's devotion to truth and an activist's demand for justice, Clare deftly unspools the multiple histories from which our ever-evolving sense of self unfolds. His essays weave together memoir, history, and political thinking to explore meanings and experiences of home: home as place, community, bodies, identity, and activism. Here readers will find an intersectional framework for understanding how we actually live with the daily hydraulics of oppression, power, and resistance. At the root of Clare's exploration of environmental destruction and capitalism, sexuality and institutional violence, gender and the body politic, is a call for social justice movements that are truly accessible to everyone. With heart and hammer, Exile and Pride pries open a window onto a world where our whole selves, in all their complexity, can be realized, loved, and embraced.
Queers and trans people in the 1980s and early '90s were dying of AIDS and the government failed to care. Lovers, strangers, artists, and community activists came together take care of each other in the face of state violence. In revisiting these histories alongside ongoing queer and trans movements, this book uncovers how early HIV care-giving narratives actually shape how we continue to understand our genders and our disabilities. The queer and trans care-giving kinships that formed in response to HIV continue to inspire how we have sex and build chosen families in the present. In unearthing HIV community newsletters, media, zines, porn, literature, and even vampires, Forget Burial bridges early HIV care-giving activisms with contemporary disability movements. In refusing to bury the legacies of long-term survivors and of those we have lost, this book brings early HIV kinships together with ongoing movements for queer and trans body self-determination.
A New York Times bestseller Winner of the 2015 Samuel Johnson Prize for non-fiction A groundbreaking book that upends conventional thinking about autism and suggests a broader model for acceptance, understanding, and full participation in society for people who think differently. What is autism? A lifelong disability, or a naturally occurring form of cognitive difference akin to certain forms of genius? In truth, it is all of these things and more--and the future of our society depends on our understanding it. WIRED reporter Steve Silberman unearths the secret history of autism, long suppressed by the same clinicians who became famous for discovering it, and finds surprising answers to the crucial question of why the number of diagnoses has soared in recent years. Going back to the earliest days of autism research and chronicling the brave and lonely journey of autistic people and their families through the decades, Silberman provides long-sought solutions to the autism puzzle, while mapping out a path for our society toward a more humane world in which people with learning differences and those who love them have access to the resources they need to live happier, healthier, more secure, and more meaningful lives. Along the way, he reveals the untold story of Hans Asperger, the father of Asperger's syndrome, whose "little professors" were targeted by the darkest social-engineering experiment in human history; exposes the covert campaign by child psychiatrist Leo Kanner to suppress knowledge of the autism spectrum for fifty years; and casts light on the growing movement of "neurodiversity" activists seeking respect, support, technological innovation, accommodations in the workplace and in education, and the right to self-determination for those with cognitive differences.
How reconsidering digital media and participatory cultures from the standpoint of disability allows for a full understanding of accessibility. While digital media can offer many opportunities for civic and cultural participation, this technology is not equally easy for everyone to use. Hardware, software, and cultural expectations combine to make some technologies an easier fit for some bodies than for others. A YouTube video without closed captions or a social network site that is incompatible with a screen reader can restrict the access of users who are hard of hearing or visually impaired. Often, people with disabilities require accommodation, assistive technologies, or other forms of aid to make digital media accessible--useable--for them. Restricted Access investigates digital media accessibility--the processes by which media is made usable by people with particular needs--and argues for the necessity of conceptualizing access in a way that will enable greater participation in all forms of mediated culture. Drawing on disability and cultural studies, Elizabeth Ellcessor uses an interrogatory framework based around issues of regulation, use, content, form, and experience to examine contemporary digital media. Through interviews with policy makers and accessibility professionals, popular culture and archival materials, and an ethnographic study of internet use by people with disabilities, Ellcessor reveals the assumptions that undergird contemporary technologies and participatory cultures. Restricted Access makes the crucial point that if digital media open up opportunities for individuals to create and participate, but that technology only facilitates the participation of those who are already privileged, then its progressive potential remains unrealized. Engagingly written with powerful examples, Ellcessor demonstrates the importance of alternate uses, marginalized voices, and invisible innovations in the context of disability identities to push us to rethink digital media accessibility.
The stories of fathers caring for non-verbal children and how these experiences alter their understandings of care, masculinity, and living a full life. Vulnerable narratives of fatherhood are few and far between; rarer still is an ethnography that delves into the practical and emotional realities of intensive caregiving. Grounded in the intimate everyday lives of men caring for children with major physical and intellectual disabilities, Worlds of Care undertakes an exploration of how men shape their identities in the context of caregiving. Anthropologist Aaron J. Jackson fuses ethnographic research and creative nonfiction to offer an evocative account of what is required for men to create habitable worlds and find some kind of "normal" when their circumstances are anything but. Combining stories from his fieldwork in North America with reflections on his own experience caring for his severely disabled son, Jackson argues that care has the potential to transform our understanding of who we are and how we relate to others.
Winner of the 2018 ALA Schneider Family Book Award, Middle Grade Books category Sixth grade is coming to an end, and so is life as Macy McMillan knows it. Already a "For Sale" sign mars the front lawn of her beloved house. Soon her mother will upend their perfect little family, adding a stepfather and six-year-old twin stepsisters. To add insult to injury, what is Macy's final sixth grade assignment? A genealogy project. Well, she'll put it off - just like those wedding centerpieces she's supposed to be making. Just when Macy's mother ought to be understanding, she sends Macy next door to help eighty six-year-old Iris Gillan, who is also getting ready to move - in her case into an assisted living facility. Iris can't pack a single box on her own and, worse, she doesn't know sign language. How is Macy supposed to understand her? But Iris has stories to tell, and she isn't going to let Macy's deafness stop her. Soon, through notes and books and cookies, a friendship grows. And this friendship, odd and unexpected, may be just what Macy needs to face the changes in her life. Shari Green, author of Root Beer Candy and Other Miracles, writes this summer story with the lightest touch, spinning Macy out of her old story and into a new one full of warmth and promise for the future.
A vibrant, edgy, fresh new YA voice for fans of More Happy Than Not and Simon vs. the Homo Sapiens Agenda, packed with interior graffiti. Winner of the Schneider Family Book Award! When Julia finds a slur about her best friend scrawled across the back of the Kingston School for the Deaf, she covers it up with a beautiful (albeit illegal) graffiti mural. Her supposed best friend snitches, the principal expels her, and her two mothers set Julia up with a one-way ticket to a "mainstream" school in the suburbs, where she's treated like an outcast as the only deaf student. The last thing she has left is her art, and not even Banksy himself could convince her to give that up. Out in the 'burbs, Julia paints anywhere she can, eager to claim some turf of her own. But Julia soon learns that she might not be the only vandal in town. Someone is adding to her tags, making them better, showing off--and showing Julia up in the process. She expected her art might get painted over by cops. But she never imagined getting dragged into a full-blown graffiti war. Told with wit and grit by debut author Whitney Gardner, who also provides gorgeous interior illustrations of Julia's graffiti tags, You're Welcome, Universe introduces audiences to a one-of-a-kind protagonist who is unabashedly herself no matter what life throws in her way. "[A] spectacular debut...a moving, beautifully written contemporary novel full of quirky art and complicated friendships...this book is a gift to be thankful for."--BookRiot
Don't miss Selznick's other novels in words and pictures, The Invention of Hugo Cabret and The Marvels, which together with Wonderstruck, form an extraordinary thematic trilogy!In this groundbreaking tour de force, Caldecott Medalist and bookmaking pioneer Brian Selznick sails into uncharted territory and takes readers on an awe-inspiring journey. Ben and Rose secretly wish their lives were different. Ben longs for the father he has never known. Rose dreams of a mysterious actress whose life she chronicles in a scrapbook. When Ben discovers a puzzling clue in his mother's room and Rose reads an enticing headline in the newspaper, both children set out alone on desperate quests to find what they are missing.Set fifty years apart, these two independent stories--Ben's told in words, Rose's in pictures--weave back and forth with mesmerizing symmetry. How they unfold and ultimately intertwine will surprise you, challenge you, and leave you breathless with wonder. Rich, complex, affecting, and beautiful--with over 460 pages of original artwork--Wonderstruckis a stunning achievement from a gifted artist and visionary.
#1 NEW YORK TIMES BESTSELLER * Millions of people have fallen in love with Auggie Pullman, an ordinary boy with an extraordinary face--who shows us that kindness brings us together no matter how far apart we are. Read the book that inspired the Choose Kind movement, a major motion picture, and the critically acclaimed graphic novel White Bird. And don't miss R.J. Palacio's highly anticipated new novel, Pony, available now! I won't describe what I look like. Whatever you're thinking, it's probably worse. August Pullman was born with a facial difference that, up until now, has prevented him from going to a mainstream school. Starting 5th grade at Beecher Prep, he wants nothing more than to be treated as an ordinary kid--but his new classmates can't get past Auggie's extraordinary face. Beginning from Auggie's point of view and expanding to include his classmates, his sister, her boyfriend, and others, the perspectives converge to form a portrait of one community's struggle with empathy, compassion, and acceptance. In a world where bullying among young people is an epidemic, this is a refreshing new narrative full of heart and hope. R.J. Palacio has called her debut novel "a meditation on kindness" --indeed, every reader will come away with a greater appreciation for the simple courage of friendship. Auggie is a hero to root for, a diamond in the rough who proves that you can't blend in when you were born to stand out.
* Newbery Honor Book * #1 New York Times Bestseller * Winner of the Schneider Family Book Award * Wall Street Journal Best Children's Books of the Year * New York Public Library's 100 Books for Reading and Sharing An exceptionally moving story of triumph against all odds set during World War II, from the acclaimed author of Fighting Words, and for fans of Fish in a Tree and Number the Stars. Ten-year-old Ada has never left her one-room apartment. Her mother is too humiliated by Ada's twisted foot to let her outside. So when her little brother Jamie is shipped out of London to escape the war, Ada doesn't waste a minute--she sneaks out to join him. So begins a new adventure for Ada, and for Susan Smith, the woman who is forced to take the two kids in. As Ada teaches herself to ride a pony, learns to read, and watches for German spies, she begins to trust Susan--and Susan begins to love Ada and Jamie. But in the end, will their bond be enough to hold them together through wartime? Or will Ada and her brother fall back into the cruel hands of their mother? This masterful work of historical fiction is equal parts adventure and a moving tale of family and identity--a classic in the making. "Achingly lovely...Nuanced and emotionally acute."--The Wall Street Journal "Unforgettable...unflinching."--Common Sense Media ★ "Brisk and honest...Cause for celebration." --Kirkus, starred review ★ "Poignant."--Publishers Weekly, starred review ★ "Powerful."--The Horn Book, starred review "Affecting."--Booklist "Emotionally satisfying...[A] page-turner."--BCCB "Exquisitely written...Heart-lifting." --SLJ "Astounding...This book is remarkable."--Karen Cushman, author The Midwife's Apprentice "Beautifully told."--Patricia MacLachlan, author of Sarah, Plain and Tall "I read this novel in two big gulps."--Gary D. Schmidt, author of Okay for Now "I love Ada's bold heart...Her story's riveting."--Sheila Turnage, author of Three Times Lucky
From the critically acclaimed author of Waiting for Normal and All Rise for the Honorable Perry T. Cook, Leslie Connor, comes a deeply poignant and beautifully crafted story about self-reliance, redemption, and hope. Mason Buttle is the biggest, sweatiest kid in his grade, and everyone knows he can barely read or write. Mason's learning disabilities are compounded by grief. Fifteen months ago, Mason's best friend, Benny Kilmartin, turned up dead in the Buttle family's orchard. An investigation drags on, and Mason, honest as the day is long, can't understand why Lieutenant Baird won't believe the story Mason has told about that day. Both Mason and his new friend, tiny Calvin Chumsky, are relentlessly bullied by the other boys in their neighborhood, so they create an underground haven for themselves. When Calvin goes missing, Mason finds himself in trouble again. He's desperate to figure out what happened to Calvin and, eventually, Benny. But will anyone believe him National Book Award Finalist * ALA Schneider Family Book Award * 2019 ALSC Notable Children's Book * Publishers Weekly Best Books of 2018 * 2019-2020 Nebraska Golden Sower Award * Amazon Best Books of 2018 * Kirkus Best of Children's 2018 * New York Public Library Best Books 2018 * Chicago Public Library Best of the Best Books 2018 * 2018 Nerdy Book Club Middle Grade Winner * South Carolina Junior Book Award Nominee * 2020 Colorado Children's Book Award Nominee * Bank Street Best Children's Book of the Year 2019 (9-12) * 2020 Grand Canyon Reader Award Nominee * 2020-2021 Missouri Association of School Librarians Mark Twain Readers Award Preliminary Nominee * 2020-2021 Indiana Young Hoosier Book Award Nominee * 2021 Connecitcut Nutmeg Book Award Middle Grade Nominee *
An ABA Indies Introduce Book An ALA/ALSC Notable Children's Book Parents' Choice Award, Fiction, Recommended "This is a splendid novel that I read in one sitting. . . . You will cheer when this kid embraces 'Do your best' and shows it to be a ringing call to nothing less than Triumph." --Gary D. Schmidt, Printz Honor winner and two-time Newbery Honor winner "Diana Harmon Asher tells an entertaining story about a boy picking his way through the potholes and pitfalls of puberty, with a little help from his friends." --Richard Peck, Newbery Medal winner "Just read it! Diana Harmon Asher has written a witty, observant, and sensitive novel for kids, as well as a delight for the adults in their lives." --Susan Isaacs, New York Times bestselling author If middle school were a race, Joseph Friedman wouldn't even be in last place--he'd be on the sidelines. With an overactive mind and phobias of everything from hard-boiled eggs to gargoyles, he struggles to understand his classes, let alone his fellow classmates. So he spends most of his time avoiding school bully Charlie Kastner and hiding out in the Resource Room, a safe place for misfit kids like him. But then, on the first day of seventh grade, two important things happen. First, his Resource Room teacher encourages (i.e., practically forces) him to join the school track team, and second, he meets Heather, a crazy-fast runner who isn't going to be pushed around by Charlie Kastner or anybody else. With a new friend and a new team, Joseph finds himself off the sidelines and in the race (quite literally) for the first time. Is he a good runner? Well, no, he's terrible. But the funny thing about running is, once you're in the race, anything can happen.
A New York Times bestseller for three years and counting! "A gutsy, candid, and compelling story. It speaks volumes." --School Library Journal (starred review) "Unflinching and realistic." --Kirkus Reviews (starred review) From award-winning author Sharon Draper comes a story that will forever change how we all look at anyone with a disability, perfect for fans of RJ Palacio's Wonder. Eleven-year-old Melody is not like most people. She can't walk. She can't talk. She can't write. All because she has cerebral palsy. But she also has a photographic memory; she can remember every detail of everything she has ever experienced. She's the smartest kid in her whole school, but NO ONE knows it. Most people--her teachers, her doctors, her classmates--dismiss her as mentally challenged because she can't tell them otherwise. But Melody refuses to be defined by her disability. And she's determined to let everyone know it...somehow.
The paperback edition of one of the most acclaimed novels of the year -- a love story & legal drama that received five starred reviews and multiple honors.The term "cognitive disorder" implies there is something wrong with the way I think or the way I perceive reality. I perceive reality just fine. Sometimes I perceive more of reality than others.Marcelo Sandoval hears music that nobody else can hear -- part of an autism-like condition that no doctor has been able to identify. But his father has never fully believed in the music or Marcelo's differences, and he challenges Marcelo to work in the mailroom of his law firm for the summer . . . to join "the real world."There Marcelo meets Jasmine, his beautiful and surprising coworker, and Wendell, the son of another partner in the firm. He learns about competition and jealousy, anger and desire. But it's a picture he finds in a file a picture of a girl with half a face that truly connects him with the real world: its suffering, its injustice, and what he can do to fight.
Told from the first-person perspective of an autistic boy, Nora Raleigh Baskin's novel is an enlightening story for anyone who has ever worried about fitting in. Jason Blake is an autistic twelve-year-old living in a neurotypical world. Most days it's just a matter of time before something goes wrong. But Jason finds a glimmer of understanding when he comes across PhoenixBird, who posts stories to the same online site as he does. Jason can be himself when he writes and he thinks that PhoneixBird-her name is Rebecca-could be his first real friend. But as desperate as Jason is to met her, he's terrified that if they do meet, Rebecca wil only see his autism and not who Jason really is. By acclaimed writer Nora Raleigh Baskin, this is the breathtaking depiction of an autistic boy's struggles-and a story for anyone who has ever worried about fitting in.
Winner of the 2018 Pura Belpre Award! "A book for anyone mending from childhood wounds."--Sandra Cisneros, author of The House on Mango Street In this unforgettable multicultural coming-of-age narrative--based on the author's childhood in the 1960s--a young Cuban-Jewish immigrant girl is adjusting to her new life in New York City when her American dream is suddenly derailed. Ruthie's plight will intrigue readers, and her powerful story of strength and resilience, full of color, light, and poignancy, will stay with them for a long time. Ruthie Mizrahi and her family recently emigrated from Castro's Cuba to New York City. Just when she's finally beginning to gain confidence in her mastery of English--and enjoying her reign as her neighborhood's hopscotch queen--a horrific car accident leaves her in a body cast and confined her to her bed for a long recovery. As Ruthie's world shrinks because of her inability to move, her powers of observation and her heart grow larger and she comes to understand how fragile life is, how vulnerable we all are as human beings, and how friends, neighbors, and the power of the arts can sweeten even the worst of times.
Read Jonathan Friesen's posts on the Penguin Blog. This Schneider Family Book Award winner changed the face of Tourette's Syndrome for modern teens. Wrought with tension, romance, and hope, Jerk, California tells the story of Sam, who sets out on a cross-country quest to learn the truth about his family and his inherited Tourette's Syndrome, along the way finding both love and acceptance.
Thirteen-year-old Joey Willis is used to being left out of conversations. Though she's been deaf since the age of six, Joey's mother has never allowed her to learn sign language. She strains to read the lips of those around her, but often fails. Everything changes when Joey meets Dr. Charles Mansell and his baby chimpanzee, Sukari. Her new friends use sign language to communicate, and Joey secretly begins to learn to sign. Spending time with Charlie and Sukari, Joey has never been happier. She even starts making friends at school for the first time. But as Joey's world blooms with possibilities, Charlie's and Sukari's choices begin to narrow--until Sukari's very survival is in doubt.
Winner of the Newbery Medal "A charming, intriguingly plotted novel."--Washington Post Newbery Medalist Erin Entrada Kelly's Hello, Universe is a funny and poignant neighborhood story about unexpected friendships. Told from four intertwining points of view--two boys and two girls--the novel celebrates bravery, being different, and finding your inner bayani (hero). "Readers will be instantly engrossed in this relatable neighborhood adventure and its eclectic cast of misfits."--Booklist In one day, four lives weave together in unexpected ways. Virgil Salinas is shy and kindhearted and feels out of place in his crazy-about-sports family. Valencia Somerset, who is deaf, is smart, brave, and secretly lonely, and she loves everything about nature. Kaori Tanaka is a self-proclaimed psychic, whose little sister, Gen, is always following her around. And Chet Bullens wishes the weird kids would just stop being so different so he can concentrate on basketball. They aren't friends, at least not until Chet pulls a prank that traps Virgil and his pet guinea pig at the bottom of a well. This disaster leads Kaori, Gen, and Valencia on an epic quest to find missing Virgil. Through luck, smarts, bravery, and a little help from the universe, a rescue is performed, a bully is put in his place, and friendship blooms. The acclaimed and award-winning author of Blackbird Fly and The Land of Forgotten Girls writes with an authentic, humorous, and irresistible tween voice that will appeal to fans of Thanhha Lai and Rita Williams-Garcia. "Readers across the board will flock to this book that has something for nearly everyone--humor, bullying, self-acceptance, cross-generational relationships, and a smartly fateful ending."--School Library Journal
A New York Times Bestseller! The author of the beloved One for the Murphys gives readers an emotionally-charged, uplifting novel that will speak to anyone who's ever thought there was something wrong with them because they didn't fit in. "Everybody is smart in different ways. But if you judge a fish by its ability to climb a tree, it will live its life believing it is stupid." Ally has been smart enough to fool a lot of smart people. Every time she lands in a new school, she is able to hide her inability to read by creating clever yet disruptive distractions. She is afraid to ask for help; after all, how can you cure dumb? However, her newest teacher Mr. Daniels sees the bright, creative kid underneath the trouble maker. With his help, Ally learns not to be so hard on herself and that dyslexia is nothing to be ashamed of. As her confidence grows, Ally feels free to be herself and the world starts opening up with possibilities. She discovers that there's a lot more to her-and to everyone-than a label, and that great minds don't always think alike.
New York Times Bestseller A 2015 Newbery Honor Book Going to school and making new friends can be tough. But going to school and making new friends while wearing a bulky hearing aid strapped to your chest? That requires superpowers! In this funny, poignant graphic novel memoir, author/illustrator Cece Bell chronicles her hearing loss at a young age and her subsequent experiences with the Phonic Ear, a very powerful-and very awkward-hearing aid. The Phonic Ear gives Cece the ability to hear-sometimes things she shouldn't-but also isolates her from her classmates. She really just wants to fit in and find a true friend, someone who appreciates her as she is. After some trouble, she is finally able to harness the power of the Phonic Ear and become "El Deafo, Listener for All." And more importantly, declare a place for herself in the world and find the friend she's longed for.PRAISE FOR EL DEAFOSTARRED REVIEWS "A standout autobiography. Someone readers will enjoy getting to know." --Publishers Weekly, starred review "Worthy of a superhero." --Kirkus Reviews, starred review "This empowering autobiographical story belongs right next to Raina Telgemeier's Smile (2011) and Liz Prince's Tomboy." --Booklist
Kirkus Award Finalist Schneider Family Book Award Winner Coretta Scott King Author Honor Book In this "pitch-perfect contemporary novel" (Kirkus Reviews, starred review), Coretta Scott King - John Steptoe Award-winning author Jason Reynolds explores multigenerational ideas about family love and bravery in the story of two brothers, their blind grandfather, and a dangerous rite of passage. Genie's summer is full of surprises. The first is that he and his big brother, Ernie, are leaving Brooklyn for the very first time to spend the summer with their grandparents all the way in Virginia--in the COUNTRY! The second surprise comes when Genie figures out that their grandfather is blind. Thunderstruck and--being a curious kid--Genie peppers Grandpop with questions about how he covers it so well (besides wearing way cool Ray-Bans). How does he match his clothes? Know where to walk? Cook with a gas stove? Pour a glass of sweet tea without spilling it? Genie thinks Grandpop must be the bravest guy he's ever known, but he starts to notice that his grandfather never leaves the house--as in NEVER. And when he finds the secret room that Grandpop is always disappearing into--a room so full of songbirds and plants that it's almost as if it's been pulled inside-out--he begins to wonder if his grandfather is really so brave after all. Then Ernie lets him down in the bravery department. It's his fourteenth birthday, and, Grandpop says to become a man, you have to learn how to shoot a gun. Genie thinks that is AWESOME until he realizes Ernie has no interest in learning how to shoot. None. Nada. Dumbfounded by Ernie's reluctance, Genie is left to wonder--is bravery and becoming a man only about proving something, or is it just as important to own up to what you won't do?
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